The Keara Project is all about “improving the lives of children with multi-system genetic disorders.”

Overview – The Keara Project is a multi-faceted approach to helping children and families affected by multi-system genetic disorders. A multi-system genetic disorder is a disease or disorder affecting more than one system of the body. This project will be a “for social benefit” company designed to bring children a positive outlook of the future through advocacy, support, awareness, and consulting.


– Every child with a multi-system genetic disorder is getting the best possible start in life
– Every family affected by a multi-system genetic disorder is finding the support they need
– The public understand the unique needs of our children and are actively supporting them
– Partner organizations of The Keara Project are setting the highest standard of performance within the non-profit sector